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Ehlers Danlos National Foundation


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http://www.ednf.org


EDNF was founded in 1985 by Nancy Rogowski. Today EDNF has a vital and dedicated membership, over 13,000 on our mailing list, and a nationwide network of members and support groups that serves a national and global EDS online community. EDNF is a founding member of the International Ehlers-Danlos Association Network which was created in 1997 to provide educational material and to support research on an international level. EDNF’s vision is to lead the search for knowledge about EDS and build a community of people who work together to effect change. The EDNF Mission is to generate resources for those affected by EDS by creating and distributing accurate information, providing a network of support and communication and fostering and funding research. EDNF is a registered 501(c)(3). For more information or to support the conference please visit www.ednf.org.



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May is Ehlers-Danlos Awareness Month

Ehlers-Danlos syndrome (EDS) is a group of inherited connective tissue disorders caused by various defects in the synthesis of collagen; characterized by articular (joint) hypermobility, skin extensibility and tissue fragility. EDS is known to affect men and women of all racial and ethnic backgrounds. Each of the six identified types of EDS is thought to [...]May 4, 2010

EHLERS DANLOS NATIONAL FOUNDATION MARKS 25TH ANNIVERSARY WITH SILVER CELEBRATION CONFERENCE AND LEARNING EVENT

The Ehlers Danlos National Foundation announced its 25th anniversary would be marked by its largest conference program ever. The conference will be held at the new Renaissance Baltimore Harborplace Hotel in Baltimore, MD begins July 15th and concludes July 17th. Being described by the EDNF leadership as the “Silver Celebration of the Gold Standard”, [...]Mar 22, 2010

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Ehlers Danlos National Foundation

Cynthia Lauren
Los Angeles, California, 90010
(213) 368-3800

http://www.ednf.org

EDNF was founded in 1985 by Nancy Rogowski. Today EDNF has a vital and dedicated membership, over 13,000 on our mailing list, and a nationwide network of members and support groups that serves a national and global EDS online community. EDNF is a founding member of the International Ehlers-Danlos Association Network which was created in 1997 to provide educational material and to support research on an international level. EDNF’s vision is to lead the search for knowledge about EDS and build a community of people who work together to effect change. The EDNF Mission is to generate resources for those affected by EDS by creating and distributing accurate information, providing a network of support and communication and fostering and funding research. EDNF is a registered 501(c)(3). For more information or to support the conference please visit www.ednf.org.